Correction to the Lipedema.org ICD-10 Coding Information

Recommended updates to the lipedema.org coding page Aug 19 2020. https://www.lipedema.org/about-lipedema The information on the www.lipedema.org web page (Aug 19, 2020) is confusing and incorrect. Please see the update below. On June 12, 2020 an ICD-10-CM evaluation committee, headed by Dr. Karen Herbst with support from the American Vein and… Continue reading

New ICD-10-CM code submission for Lipedema to NCHS/CDC June 12 2020

Lipedema and Lipolymphedema [Update September 9, 2020 Karen Herbst presented the new codes to the NCHS/CDC committee. The meeting went well and after a public review period it will be determined in early 2021 if they will move forward with the new codes.] Lipedema, initially described at the Mayo clinic… Continue reading

Questions for Providers/Researchers

Recently Providers and researchers have asked me how they can help. Here is a list of questions. Don’t feel like you need to answer them all. Which ICD-10 code do they use for lipedema: R60.9, Edema, Q82.0 Familial Hereditary Edema, or E88.2: Adiposis dolorosa; Lipomatosis dolorosa (Dercum’s disease)? Do they… Continue reading

Request for Feedback on Lipedema ICD-10-CM Codes for NCHS

I am preparing a submission for the addition of specific lipedema codes for publication on Oct. 1 2021 to The National Center for Health Statistics (NCHS). Specific lipedema codes are needed for identification, tracking, and research. There are two due dates for feedback: June 12, 2020 and then September 2020…. Continue reading